Rare disease

I'm someone Rare for rare Disease awareness day

The National Organization for Rare Disorders (NORD) is proud to be the official US partner for Rare Disease Day.

Information includes a list of rare diseases and the definition of the term orphan disease, which is sometimes used as a synonym for rare disease

With more than 7,000 rare disease affecting 350 million people worldwide, rare is everywhere. Find out just how far rare reaches.

Running for Rare? ⭐ Running for Rare ❗ Rare Disease Day 2023

We Are All Zebras: How Rare Disease Is Shaping the Future of Healthcare - Download as a PDF or view online for free

Decorate and personalize laptops, water bottles, and more Removable, kiss-cut vinyl stickers Super durable and water-resistant 1/8 inch (3.2mm) white border around each design Matte finish For orders with 2+ small stickers, they will be printed in pairs with two stickers on one sheet to reduce sheet waste Since every item is made just for you by your local third-party fulfiller, there may be slight variances in the product received

What are the RARE Autoimmune Diseases and what does rare actually mean?

Rare disease medical costs are often 3 to 5 times higher than non-rare diseases. 🦓 The Zebra is a symbol for rare diseases. Why? Because in medical school, many doctors are taught to think, “If you hear hoofbeats in the hallway, think horses, not zebras.” This basically means “think of common causes for a patient’s symptoms, not rare ones.” But, in some cases, it actually is a zebra! 🖤🤍 Let’s talk more data about rare diseases: 👉🏻 70% start in childhood 👉🏻 72% are genetic 👉🏻 90%+ do…

Zebra - print ribbon as symbol of rare-disease awareness, Ehlers-Danlos syndrome. Isolated vector illustration, illustration, #vector, #Isolated, #Ad

Nursing kingdoms on Instagram: "✨Kawasaki Disease: Understanding a Rare but Serious Childhoodness Kawasaki Disease is a relatively rare but potentially serious illness that primarily affects children under the age of five. ⚡ First described by Dr. Tomisaku Kawasaki in 1967, this condition is characterized by inflammation of the blood vessels throughout the body. The exact cause of Kawasaki Disease is *still unknown* although it is believed to be related to an abnormal immune response…

Decorate and personalize laptops, water bottles, and more Removable, kiss-cut vinyl stickers Super durable and water-resistant 1/8 inch (3.2mm) transparent border around each design Transparent with adhesive back, perfect for glass and plastic For orders with 2+ small stickers, they will be printed in pairs with two stickers on one sheet to reduce sheet waste Since every item is made just for you by your local third-party fulfiller, there may be slight variances in the product received

The Internet is full of advice for every ailment, but it’s not always helpful. Receiving a rare disease diagnosis as an adult — sometimes referred to as a late-onset diagnosis — can present a unique set of challenges and questions for a patient. We asked our rare community to share their advice for someone who is newly diagnosed. Click the link to read what has actually helped people with late-onset rare disease diagnoses. Sponsored by @CatalystForRare

The road to a correct rare disease diagnosis is far too long. This Undiagnosed Day, please share this infographic with your community and if you, or someone

Diseases are something common to all human beings, but there are some diseases that only a few people in the world have. Here are some of them.

The Mighty and Global Genes ask the rare disease community, "What's the hardest part of having a rare disease?"

The Mighty teams up with the National Organization for Rare Disorders (NORD) for World Rare Disease Day 2019 to ask their communities, "What's one misconception about living with a rare disease?"

Don't miss this story about Patient Worthy's "Share Your Stripes" Initiative for Rare Disease Day 2024.

AI won't replace doctors but will free them up to operate at the apex of their professional mission: humanistic interactions and relationships with those in their care.